Today was a great day.. Deecon's long line is finally out :) He no longer requires additinal fluids to his diet because our big boy is now on maximum feeds. :) We are so proud of him, within one week he increased from Tuesday 2cc's/hr to his max. feeds by friday of 5cc's /hr continuous. This is such a great moment because we have had so many concerns regarding his stomach since birth. Now he should be able to put on the weight needed to get bigger and stronger. He is now 870 grams which is one pound 14.68oz, just shy of two pounds. Today when the RT (respitory therapist) was changing his nose prongs to a mask we were able to se his precious little face for the first time. Can you believe it's been 38 days and I have not seen his full face without the massive amounts of tu
bes etc. This was a priceless moment. I was so happy and he is sooo adorable.. Aunt Tissy took lots of pictures of him for me so that I could gaze at them all night long. Since his Art line is out he has required less blood work which is good. His blood work, CO2 gases, glucose etc. has come back good, as well as his white blood cell count is back down, but he is still on his antifungal until the 21st. The only issue we are having is his hemoglobin level. Deecon has now undergone multiple transfusions and as of 6 weeks babies start reticking, meaning making their own red blood cells. So with us reaching this 6 week target babies are not ordered blood transfusion easily because they don't want to train the babies bodies to not make their own red blood cells. So for now we will wait and see how Deecon does on his own. The only signs of possible problems he is currently having is called
Bradycardia. Mommy and Daddy found out what this was the hard way. We were visiting him and his alarms started going off, which we have been used to dsat's but the number there was fine. So you could imagine my panic when I looked at his heart rate which usually read in the 150's and saw it declining into the 70's. We panicked and the nurse took over. This is a condition where preemie babies either are in a deep sleep and forget to breath, or their feeds are brought up their tube and sit in the back of their throat and block their airway. This can also be a side effect of having a low hemoglobin count, so I hope Deecon creates more red blood cells soon. The nurse explained that sometimes babies bring their heart rate up on their own, but often they need what's called stimulation, described as shaking the babies gently on their bums until the rate increases back to normal. I would not want to see what happens when this does not work. The nurse explained to me.. not to panic she said.. if you see me panic, then you panic.. This definately did not comfort us... But Deecon rarely needs to be stimulated and brings his heart rate up on his own, which is good. Today I was given his blue birth hat, along with an ET tube and nose prongs for his baby book... ;) He is such a strong little guy, who has been through so much and he is only 38 days old...
bes etc. This was a priceless moment. I was so happy and he is sooo adorable.. Aunt Tissy took lots of pictures of him for me so that I could gaze at them all night long. Since his Art line is out he has required less blood work which is good. His blood work, CO2 gases, glucose etc. has come back good, as well as his white blood cell count is back down, but he is still on his antifungal until the 21st. The only issue we are having is his hemoglobin level. Deecon has now undergone multiple transfusions and as of 6 weeks babies start reticking, meaning making their own red blood cells. So with us reaching this 6 week target babies are not ordered blood transfusion easily because they don't want to train the babies bodies to not make their own red blood cells. So for now we will wait and see how Deecon does on his own. The only signs of possible problems he is currently having is called
Bradycardia. Mommy and Daddy found out what this was the hard way. We were visiting him and his alarms started going off, which we have been used to dsat's but the number there was fine. So you could imagine my panic when I looked at his heart rate which usually read in the 150's and saw it declining into the 70's. We panicked and the nurse took over. This is a condition where preemie babies either are in a deep sleep and forget to breath, or their feeds are brought up their tube and sit in the back of their throat and block their airway. This can also be a side effect of having a low hemoglobin count, so I hope Deecon creates more red blood cells soon. The nurse explained that sometimes babies bring their heart rate up on their own, but often they need what's called stimulation, described as shaking the babies gently on their bums until the rate increases back to normal. I would not want to see what happens when this does not work. The nurse explained to me.. not to panic she said.. if you see me panic, then you panic.. This definately did not comfort us... But Deecon rarely needs to be stimulated and brings his heart rate up on his own, which is good. Today I was given his blue birth hat, along with an ET tube and nose prongs for his baby book... ;) He is such a strong little guy, who has been through so much and he is only 38 days old... 
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