Christmas was really hard for us. We stayed in London with Deecon as long as we could on Christmas Eve, but had to return home for the girls and for family celebrations. I found it difficult to celebrate because he wasn't in my arms to celebrate with us. During the Christmas holidays the girls each got to spend some quality time with thier baby brother. They each got to hold him like a real baby as well as help ba
th and change him. Deecon had a very Merry Christmas but Boxing day was a bit roug
h for him. He started it off with a big Brady, dropping his heart rate which required major stimulation and oxygen. They found that it may be due mostly to his
problem with acid reflux. Deecon has been on his two medications for reflux, renenidine and maxera
nt for sometime now so they decided to increase it to help keep his stomach at rest to lessen his bradycardia moments. They also decided to raise his oxygen to 125%. His weight is increasing at a great rate, he is the big 4pounds 14oz. He changes so much each day. :) As 2008 ended we were able to weign Deecon's oxygen down to 110%. By the new year Deecon's weight reached 5 pounds :) But the New Year was not as kind to
him as we would've liked. Deecon had another Bradycardia, requiring stimulation but this time he needed additional assitance called sipap. This is a oxygen mask that they place over his whole nose and mouth area to pump maximum oxygen in him. He recovere
d niclely but with two Brady's so close together the doc
tors decided to have a chest xray done. The xray showed that Deecon has some streaking on his lungs which is causing him his problems. The doctors were not sure if the streaking was showing the early sings on pneumonia or if it was just fluid accumilating on his lungs so they decided the
y would try another shot of medicine called Lasix which hopefully will help eliminate his fluid on his lungs, in turn allow us to lower his oxygen requirements. With Lasix we have to keep track of his urine output and so far so good :) He had another CAH blood test done as well and we should have the results in a few weeks. Even though he has had two positive results I still don't think Deecon has this disease all I need is the result to proove it ;)
th and change him. Deecon had a very Merry Christmas but Boxing day was a bit rough for him. He started it off with a big Brady, dropping his heart rate which required major stimulation and oxygen. They found that it may be due mostly to his
problem with acid reflux. Deecon has been on his two medications for reflux, renenidine and maxera
nt for sometime now so they decided to increase it to help keep his stomach at rest to lessen his bradycardia moments. They also decided to raise his oxygen to 125%. His weight is increasing at a great rate, he is the big 4pounds 14oz. He changes so much each day. :) As 2008 ended we were able to weign Deecon's oxygen down to 110%. By the new year Deecon's weight reached 5 pounds :) But the New Year was not as kind to him as we would've liked. Deecon had another Bradycardia, requiring stimulation but this time he needed additional assitance called sipap. This is a oxygen mask that they place over his whole nose and mouth area to pump maximum oxygen in him. He recovere
d niclely but with two Brady's so close together the doc
tors decided to have a chest xray done. The xray showed that Deecon has some streaking on his lungs which is causing him his problems. The doctors were not sure if the streaking was showing the early sings on pneumonia or if it was just fluid accumilating on his lungs so they decided the
y would try another shot of medicine called Lasix which hopefully will help eliminate his fluid on his lungs, in turn allow us to lower his oxygen requirements. With Lasix we have to keep track of his urine output and so far so good :) He had another CAH blood test done as well and we should have the results in a few weeks. Even though he has had two positive results I still don't think Deecon has this disease all I need is the result to proove it ;) 
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